{"id":69797,"date":"2025-05-28T08:00:20","date_gmt":"2025-05-28T05:00:20","guid":{"rendered":"https:\/\/www.silutesnaujienos.lt\/lt\/?p=69797"},"modified":"2025-05-21T14:50:55","modified_gmt":"2025-05-21T11:50:55","slug":"hemofilija-nuo-gresmingu-kraujavimu-iki-visavertes-profilaktikos","status":"publish","type":"post","link":"https:\/\/www.silutesnaujienos.lt\/lt\/hemofilija-nuo-gresmingu-kraujavimu-iki-visavertes-profilaktikos\/","title":{"rendered":"Hemofilija: nuo gr\u0117sming\u0173 kraujavim\u0173 iki visavert\u0117s profilaktikos"},"content":{"rendered":"

\u201eGydydami hemofilij\u0105 pasiek\u0117me aukso am\u017ei\u0173\u201c, \u2013 sako vaik\u0173 onkohematolog\u0117 dr. S. \u0160aulyt\u0117 Trakymien\u0117. Nuo XX a. vidurio supratimas apie lig\u0105 kardinaliai pasikeit\u0117: gydymo tikslas \u2013 ne tik stabdyti kraujavim\u0105, bet jo i\u0161vengti. \u201eKaip vakcinos apsaugo nuo infekcij\u0173, taip ir gydydami hemofilij\u0105 siekiame kraujavim\u0173 prevencijos. Profilaktika tapo gydymo standartu\u201c, \u2013 ai\u0161kina gydytoja.<\/p>\n

Anks\u010diau gydymas buvo brangus ir sunkiai prieinamas. Lietuvoje tik nuo 2017 m. \u012fgyvendinta kraujavim\u0173 profilaktika, ta\u010diau daugeliui pacient\u0173 tai dar nebuvo patogi i\u0161eitis: vaistai buvo leid\u017eiami \u012f ven\u0105, kelis kartus per savait\u0119, tai daryti nuolat buvo psichologi\u0161kai ir fizi\u0161kai sud\u0117tinga.<\/p>\n

Dabar galima pacientui pasi\u016blyti kelet\u0105 gydymo variant\u0173: tiek tradicin\u0119 intravenin\u0119 terapij\u0105, tiek moderni\u0105 poodin\u0119. Kartu priimamas sprendimas, kuris geriausiai atitinka jo gyvenimo b\u016bd\u0105. Poodin\u0117 terapija tampa prover\u017eiu. Vaistai, leid\u017eiami \u012f pood\u012f \u2013 nuo karto per savait\u0119 iki karto per m\u0117nes\u012f, naudojant nedidelius injektorius. Galima vaist\u0105 ne\u0161iotis su savimi ir gyventi nevar\u017eom\u0105 gyvenim\u0105.<\/p>\n

Gyvenimas po ligos<\/strong><\/p>\n

Anks\u010diau vaistai buvo leid\u017eiami tik i\u0161kilus kraujavimo rizikai. \u201cDabar mes sakome: leiskit\u0117s vaistus nuolat, kad kraujavim\u0173 neb\u016bt\u0173. Tai ne tik medicini\u0161kai pagr\u012fstas, bet ir emoci\u0161kai saugesnis kelias\u201c, \u2013 teigia gydytoja.<\/p>\n

19-metis panev\u0117\u017eietis Nedas Mileris \u2013 dvira\u010di\u0173 entuziastas ir sporti\u0161kas vaikinas. Nuo gimimo serga hemofilija.<\/h3>\n

\u2013 Kada su\u017einojote, kad sergate?<\/strong><\/p>\n

\u2013 Mano t\u0117vai \u017einojo, kad galiu paveld\u0117ti \u0161i\u0105 lig\u0105, brolis taip pat ja serga. Kai gimiau, jiems pasidar\u0117 ai\u0161ku labai greitai: vos kur nors u\u017esigaudavau, ta vieta smarkiai i\u0161tindavo. Diagnoz\u0117 tik patvirtino tai, k\u0105 jie jau \u012ftar\u0117.<\/p>\n

\u2013 Su kokiais sunkumais da\u017eniausiai susiduriate?<\/strong><\/p>\n

\u2013 Vaikyst\u0117je reik\u0117davo pasisaugoti, bet ne visada pavykdavo. B\u016bdavo, kad mokykloje prad\u0117davo b\u0117gti kraujas, o mokytojai nesuprasdavo, kod\u0117l noriu gr\u012f\u017eti namo \u2013 tekdavo ai\u0161kinti, kas man yra. Broliui da\u017enai kraujuodavo nosis, o man po kritim\u0173 sutindavo u\u017egautos vietos. Kartais atrodydavo, kad nieko blogo \u2013 d\u017einsai apsaugodavo ir kraujo kartais nesimatydavo, bet jis kaupdavosi viduje. Gr\u012f\u017edavau namo ir leisdavausi vaistus.<\/p>\n

\u2013 Ar b\u016bna, kad jau\u010diat\u0117s nesaugiai?<\/strong><\/p>\n

\u2013 Va\u017eiuodamas dvira\u010diu visada stengiuosi negri\u016bti, bet su tokia transporto priemone tai ne visada \u012fmanoma. Bijodavau ne tiek traum\u0173, kiek skausmo ir komplikacij\u0173. \u017dinodavau, kad reikia greitai sustabdyti kraujavim\u0105. Yra buv\u0119 ir rimt\u0173 situacij\u0173.<\/p>\n

\u2013 Kaip atrodo gydymas dabar?<\/strong><\/p>\n

\u2013 Tre\u010dius metus kasdien leid\u017eiuosi vaistus \u012f pood\u012f. Anks\u010diau reik\u0117jo leistis \u012f ven\u0105. \u012e ven\u0105 suleisti vaistai grei\u010diau sustabdo kraujavim\u0105, bet poodiniai vaistai veikia tolygiau \u2013 pagal tyrim\u0173 kreives matyti, kad vaistas krauj\u0105 i\u0161laiko stabil\u0173, bet \u0161iek tiek nekre\u0161ant\u012f. Man tai patogiau \u2013 nereikia ie\u0161koti venos, ruo\u0161tis, galiu pasiimti vaistus su savimi \u012f kelion\u0119.<\/p>\n

\u2013 Kaip J\u016bs\u0173 aplinka reaguoja su\u017einoj\u0119, kad sergate hemofilija?<\/strong><\/p>\n

\u2013 Vaikyst\u0117je niekas nesureik\u0161mindavo. Bet kai prad\u0117jau aktyviau va\u017ein\u0117tis dvira\u010diu, draugai baimindavosi, kad man kas nors atsitiks. Vien\u0105 dien\u0105 su draugu va\u017ein\u0117jom, o man prad\u0117jo b\u0117gti kraujas i\u0161 pir\u0161to. Draugas i\u0161ties i\u0161sigando.<\/p>\n

\u2013 K\u0105 pasakytum\u0117te \u017emon\u0117ms, kuriems diagnozuota hemofilija?<\/strong><\/p>\n

\u2013 Svarbiausia \u2013 ramyb\u0117, \u0161iandien gydymas pa\u017eangus, galima gyventi visavert\u012f gyvenim\u0105. Ai\u0161ku, reikia neignoruoti saugumo, bet nebijoti ir neatsisakyti dalyk\u0173, kurie teikia d\u017eiaugsm\u0105. \u0160iandien galima gyventi kaip visi.<\/p>\n

D\u0117mesys moterims<\/strong><\/p>\n

\u201eDar daug manan\u010di\u0173, kad moterys tik ne\u0161ioja gen\u0105. \u012erodyta, kad moterys taip pat gali sirgti hemofilija. Iki tre\u010ddalio hemofilijos geno ne\u0161iot\u0173j\u0173 patiria padidint\u0105 kraujavimo rizik\u0105\u201c, \u2013 sako gydytoja.<\/p>\n

Moterims kraujavimo problema ypa\u010d aktuali per menstruacijas, gimdymo ir pogimdyviniu laikotarpiu, kai kraujavimai gali sukelti komplikacij\u0173. Svarbu ie\u0161koti toki\u0173 moter\u0173, ne tik d\u0117l genetinio faktoriaus nustatymo, bet ir vertinant reali\u0105 kraujavimo rizik\u0105 j\u0173 sveikatai. Ypa\u010d svarbu \u0161i\u0105 rizik\u0105 nustatyti iki planuojamo gimdymo ar bet kokios chirurgin\u0117s intervencijos, kad b\u016bt\u0173 galima suplanuoti tinkam\u0105 kraujavimo prevencij\u0105. Svarbu u\u017etikrinti, kad n\u0117 viena moteris \u2013 hemofilijos geno ne\u0161iotoja \u2013 nelikt\u0173 ne\u017einioje vien tod\u0117l, kad serga ne ji, o jos s\u016bnus.<\/p>\n

VUL Santaros klinik\u0173 inf.<\/strong><\/p>\n","protected":false},"excerpt":{"rendered":"

\u201eGydydami hemofilij\u0105 pasiek\u0117me aukso am\u017ei\u0173\u201c, \u2013 sako vaik\u0173 onkohematolog\u0117 dr. S. \u0160aulyt\u0117 Trakymien\u0117. Nuo XX a. vidurio supratimas apie lig\u0105 kardinaliai pasikeit\u0117: gydymo tikslas \u2013 ne tik stabdyti kraujavim\u0105, bet jo i\u0161vengti. \u201eKaip vakcinos apsaugo nuo infekcij\u0173, taip ir gydydami hemofilij\u0105 siekiame kraujavim\u0173 prevencijos. Profilaktika tapo gydymo standartu\u201c, \u2013 ai\u0161kina gydytoja. Anks\u010diau gydymas buvo brangus […]<\/p>\n","protected":false},"author":2,"featured_media":69798,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[53],"tags":[47],"class_list":["post-69797","post","type-post","status-publish","format-standard","has-post-thumbnail","category-sveikatos-saltinis","tag-pirmasis"],"yoast_head":"\nHemofilija: nuo gr\u0117sming\u0173 kraujavim\u0173 iki visavert\u0117s profilaktikos - \u0160ilut\u0117s naujienos<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.silutesnaujienos.lt\/lt\/hemofilija-nuo-gresmingu-kraujavimu-iki-visavertes-profilaktikos\/\" \/>\n<meta property=\"og:locale\" content=\"lt_LT\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Hemofilija: nuo gr\u0117sming\u0173 kraujavim\u0173 iki visavert\u0117s profilaktikos - \u0160ilut\u0117s naujienos\" \/>\n<meta property=\"og:description\" content=\"\u201eGydydami hemofilij\u0105 pasiek\u0117me aukso am\u017ei\u0173\u201c, \u2013 sako vaik\u0173 onkohematolog\u0117 dr. S. \u0160aulyt\u0117 Trakymien\u0117. Nuo XX a. vidurio supratimas apie lig\u0105 kardinaliai pasikeit\u0117: gydymo tikslas \u2013 ne tik stabdyti kraujavim\u0105, bet jo i\u0161vengti. \u201eKaip vakcinos apsaugo nuo infekcij\u0173, taip ir gydydami hemofilij\u0105 siekiame kraujavim\u0173 prevencijos. Profilaktika tapo gydymo standartu\u201c, \u2013 ai\u0161kina gydytoja. 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